Rob’s not stopping for LQTS Type 2

In 2006, Rob’s first cousin once removed received a diagnosis of Long QT Syndrome after experiencing multiple fainting episodes that required hospitalization. The diagnosis prompted the rest of Rob's family to undergo testing, and it was discovered that Rob and his brother both had Long QT Type 2.

As a precautionary measure, Rob received a cardiac defibrillator implant following his diagnosis. Although the surgery was initially daunting, he eventually adapted to living with the device. However, it wasn't until 2011 that he discovered his love for running.

Since then, Rob has participated in numerous endurance events, including four ultra-marathons, nine marathons, twenty-five half-marathons, six half ironman races, one ironman race, and many sprint triathlons. Running has become his passion and a means for him to become the best version of himself.

This past weekend, on April 23 at the London Marathon, Rob accomplished his personal best time of 3:26:04, with an average pace of roughly 4:51 per kilometer (7:49 per mile).

Rob's message to the Long QT community is to not fear their diagnosis. He lives his life by the same philosophy he applies in racing: "Control what you can control."

Congratulations, Rob, on the wonderful achievement, and keep on showing the Long QT community how to be relentless, one step at a time!

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Abrielle was two when diagnosed with LQTS Type 3

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Inside Thryv - A Conversation with Debra Odink, President & CDO